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Archive for February 7th, 2017

Sticks and stones I can cope with, but the past couple of years has thrown up an almost relentless series of words and sentences that I’d never heard before.

Individually they’re unpleasant.

Cumulatively they’ve been as draining as anything I can remember, and their impact has been much deeper and persistent than any bruise or broken bone.

 

Aggressive T2 tumour in the bladder… radical cystectomy…

We think you should involve the police… “I just want it to stop“… 

Congestive heart failure… passed away peacefully on 14th September

masses in the lymph nodes and pelvis… chemotherapy… inoperable… balancing quality vs quantity of life…

the diagnosis of Dementia is confirmed – Alzheimer’s/Vascular mix… unable to live independently at home… had another fall last night…

Anxiety attacks… learning support… there was an incident… not engaging in class… found crying in the toilets… didn’t turn up…

Significant degradation in the visual fields tests… low-pressure glaucoma… repeat these tests every 6 months… if it affects the other eye you will have to inform the DVLA…

‘Concrete thinking’… sensory overload… problems with language processing… gender dysphoria… meltdowns… 

…confirm the diagnosis of Autism – Asperger’s Type… Cognitive Behavioural Therapy… 

 

I know that everyone goes through this sort of stuff. I know that many, many people have it much worse.

I know I am blessed with loved ones, family and friends.

I know I have much to look forward to, much to be thankful for.

I know that diagnosis is a starting point, an opportunity to shape a new normal.

But right now I’d take a beating to not have heard some of these words, or to not hear them again.

 

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